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Seven year old JD Johnson received word his “Make a Wish” was coming true…a trip to Disney World. JD and his family will gather at 5 o’clock PM at Jose’s to celebrate his wish coming true.
Make-A-Wish Foundation is a non-profit organization founded in the United States that grants “wishes” to children with life-threatening medical conditions
What a special young man JD is! Check out his story!
(Parents are April and Jay Johnson of Mize)
Hi my name is JD Johnson!
I am 7 years old!!
I am 1 in 100!!!
💔This is heart awareness month and my birthday month💔
I was born with heterotaxy syndrome- resulting in malformation of the intestines
complete heart block (pacemaker)
HLHS-variant
Double outlet right ventricle
Continuation of the azygous vein
Bilateral SVCs
Transposition of the great arteries
Mitral valve atresia
VSD
Tricuspid regurgitation
Trivial aortic valve regurgitation
Hepatic veins ascending off right atrium
Pulmonary vein stenosis
Single ventricle- left is nonfunctioning
Left and right pulmonary veins entering into the left atrium.
Pulmonary AVM’s
3mm fenestration
DORV with malposed GA, subPS, mitral atresia, left-sided pulmonary veins draining to coronary sinus, interrupted IVC with azygous continuation to RSVC, LSVC to CS without bridging vein, left atrial isomerism, RAA with MIB
(mommy said she “thinks” that’s it… not 100% sure maybe a few more to add)
Surgeries: Blair E. Batson Children’s Hospital- Jackson MS
Memorial Hermann Children’s Hospital- Houston TX
Surgeons:
Dr. Salazar
Dr. Kogon
My cardiologist is Dr. Shores in MS and Dr. Aggarwal in TX
I have had 4 OHS- Dr. Salazar
– ages 1 week and 5 months, MS
– age 5, TX
– age 5, TX
3 heart caths- Dr. Botlivalia and Dr. Makowitts
– ages 4 months, 23 months, and 4 years old
LADDs procedure, appendectomy, and circumcision
– age 17 months..Dr. Sawaya
And pacemaker generator exchange. Age 2- 12/3/18!Dr. Kogon
06/09/21 Houston tx. Age 5 Fontan
Dr. Salazar
9/28/21 Houston tx age 5
Dr. Salazar- pacemaker exchange and lead replacement children’s Hermann memorial hospital
God has big plans for me!!
I am a warrior! I am a fighter! I get my strength from my parents, siblings, family, friends, but most importantly from God! He created me in his image, he knew me before he formed me in my mother’s womb, and this is his ultimate plan for me!
He knows what my future holds, although I do not.
I trust in his words, and in his plans for me.
I know he has given me this challenge as an opportunity to share my testimony with others, who maybe going through something similar or who may need to come to know Christ as their Lord and savior!
This is who I am! I am JD Johnson and I have a pretty AWESOME “zipper”!
I am a mighty warrior and super hero!
I also have 3 amazing sisters, who are heart healthy!! Bella age 5, Natalee age 9, Julianna age 1!!
Our house is full of blessings!!!
This is all about JD… that’s me!! ❤️
(Main picture is JD’s doctor, Dr. Jennifer Shores)
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